EuroQol Experimental Version Registration

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The EuroQol Research Foundation (“Foundation”) is a registered non-profit organization in the Netherlands. The Foundation serves as the single point of distribution of EuroQol instruments.


Experimental instruments
Foundation manages the intellectual property rights (“IP Rights”) of all instruments owned by the EuroQol Group Association. The Foundation is thus entitled to distribute these instruments, including, but not limited to, the Experimental EQ-HWB, EQ-HWB-S, EQ-TIPS and EQ-5D-Y-5L instruments. This includes negotiating license agreements. Therefore, as part of the Foundation the EuroQol Office is entitled to protect the IP Rights of EuroQol instruments. The IP protection policy can be found on our website.


Collaboration
EQ-HWB, EQ-HWB-S, EQ-TIPS and EQ-5D-Y-5L are not publicly available yet and are only shared with researchers who are willing to serve as a collaborator on their development. Collaboration is possible on fundamental research that informs decisions about the instruments. The research performed by collaborators is not expected to generate findings with an immediate application.


Applicants can submit a request for collaboration by completing this registration form. Requests will be reviewed by the EQ-HWB(-S) / EQ-TIPS / EQ-5D-Y-5L developer group and may be accepted or rejected.


In case the applicant is accepted as a collaborator, the applicant may collaborate in the EQ-HWB(-S) / EQ-TIPS / EQ-5D-Y-5L developer group on the further development of the EQ-HWB(-S) / EQ-TIPS / EQ-5D-Y-5L instruments. The collaborator will receive a Collaborator Status and will be required to sign legal documents.


Sharing study results
By completing this registration form, applicant understands and accepts that study results will be shared with the EQ-HWB(-S) / EQ-TIPS / EQ-5D-Y-5L developer group upon request.


The collaboration with the EQ-HWB(-S) / EQ-TIPS / EQ-5D-Y-5L developer group will include the following possible requests for data sharing:
  • Sharing combined datasets resulting from the project with the EQ-HWB(-S) / EQ-TIPS / EQ-5D-Y-5L developer group. The EQ-HWB(-S) / EQ-TIPS / EQ-5D-Y-5L developer group may perform analyses on the collected data or;
  • Sharing analyses on the collected data resulting from the project with the EQ-HWB(-S) / EQ-TIPS / EQ-5D-Y-5L developer group.
After anonymization, the developer group will use the information you provided in EuroQol reports on Experimental Version usage. The developer group will contact you in case of important product notifications.


The Foundation makes no representations or warranty whether the Experimental Version is of sufficient quality or fit for the purposes for which User intends to use the Experimental Version. The Foundation will not be liable for the use of Experimental Versions.

Research and Development

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Your Details


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Co-applicants


This will be used in our customer platform to access, and you can add Co-applicant as many as you want.

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Intended use of Experimental Version


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Study motivation



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Summary of the project



  1. Use of Instruments:
    Description of the planned use EuroQol instruments by including information on whether the full instrument or only some items will be used.
  2. Data Collection:
    Description of how data will be obtained e.g primary data collection or piggyback study and, if data is already available, their characteristics and who funded the project.
  3. Population:
    Describe in which population the Experimental instrument was or will be administered, including information about the sample size and motivation of the importance of the chosen population.
  4. Comparative studies:
    In case of comparative studies, provide information on which instuments will be used as comparators.
  5. Appropriateness of items:
    For studies investigating the appropriateness of individual items, other candidate items, rewording of items, the appropriateness of the frequency and severity levels etc., and studies investigating methodological questions for future valuation studies, explain in detail the steps of the project.
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Contribution



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Select Experimental Version


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Permission



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Please note that EuroQol Research Foundation does not recommend modifying Experimental Version, as by changing the instructions of Experimental Version results in an instrument that deviates significantly from the original version. This could lead to difficulties with authorities if they request Experimental Version data, as the modified version might produce different data.
EuroQol Research Foundation would not be responsible and not liable for any issues with the use of the data.
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